Prečo Darcovskú výzvu zakladám

Who is organizing the campaign?

Hello everyone!
We would like to introduce you to our daughter Tamarka. Tamarka will turn ten in December.
Maybe you already met Tamarka and noticed she is a bit shorter than her peers. That’s because she was born with achondroplasia, a bone growth disorder that impairs her ability to grow.
We are raising money to help fund a new treatment for Tamarka that could vastly improve her quality of life – not only adding precious centimeters that she so wishes for, but mitigating health complications that will accompany her for her entire life. The treatment is possible only until puberty, before the growth plates of the bones are closed. This means that the time frame for Tamarka’s treatment is limited, but with your help there is still hope that she can grow. We hope we can raise enough funds to pay for her treatment until the moment the health insurance system in Slovakia will take it upon itself to finance her treatment, as they do in many other countries, or until she won’t need it anymore.
 
Who are we going to help?

It is not easy to describe how hard it is for me to see my friends grow and change, while I remain the same. But I am not giving up.   
I need your help to be able to grow now, as this treatment won’t be possible after I reach puberty.
Your contributions, no matter how small or big, can make a huge difference in my life.
They will help me fulfill my dream and show the world that even if we are small, we can have big hearts and big dreams.
I would like to thank each and every one of you for offering a helping hand. Together we can change the world and help children, like me, to grow and reach their dreams.
Imagine how wonderful it would be for me to look into my friends’ eyes at the same eye level.
Thank you for your support and trust.
Together we can achieve great things.
 
What will be the funds raised in this campaign used for?
Tamarka was born with achondroplasia, a rare genetic mutation. This disorder impairs growth resulting in short limbs, and without treatment she will grow only up to 115–130 cm.
Fortunately, there is a new medicine for treating achondroplasia, Voxzogo, which could make a huge difference in Tamarka’s life.
Voxzogo has the potential to bring significant improvements:
1. It will enable her to grow almost like her peers
2. It will improve her hearing by removing respiratory blockages
3. It will strengthen her legs and she won’t need a surgery
4. It will ensure correct development of cartilage tissue into bones
5. It will support the growth of her nasal bones
6. It will alleviate her back and leg pains
The health insurance system in the neighboring Czech Republic pays for the treatment and Tamarka’s Czech friends are eligible to get it for free.
Tamarka and her family face huge expenses for the treatment. It costs 160,000 euro per year in the Czech Republic, while in Slovakia it is even more expensive and the health insurance system has refused repeatedly to cover it for children in Slovakia.
Our family is turning to you to ask for your help in covering Tamarka’s treatment. We believe that each contribution, no matter how small, will help bringing a big change.
Without treatment, Tamarka is facing not only health complications like surgeries, loss of hearing and chronic pains, but also social difficulties that can have a significant negative impact on her quality of life.
Your generosity can give one little girl a chance for a better life and our family would be immensely grateful to you for that.